PozQoL Scale — Quality of life among people with HIV
Image from ViiV Healthcare and Shutterstock’s HIV in View collection
About the English version of PozQoL
The English version of PozQoL:
- Was validated on a sample of 465 adult Australians living with HIV (2016-2018)
- Was piloted in 10 Australian organisations that work with people living with HIV (2018-2019)
- Is being used in various settings
PozQoL scale in English
PozQoL Scale
Optional = “This survey is intended for people living with HIV.”
Essential = “We would like to ask you about your health, relationships, life satisfaction, and wellbeing. Please indicate how much the following statements apply to you on a scale from 1 (not at all) to 5 (extremely).”
Optional numeration for the response table = 1 – not at all 2 – slightly 3 – moderately 4 – very 5 – extremely.
- I am enjoying life.
- I worry about my health.
- I lack a sense of belonging with people around me.
- I feel that HIV prevents me from doing as much as I would like.
- I feel good about myself as a person.
- Having HIV limits my opportunities in life.
- I worry about the impact of HIV on my health.
- I feel in control of my life.
- I am afraid that people may reject me when they learn I have HIV.
- Managing HIV wears me out.
- I feel that HIV limits my personal relationships.
- I fear the health effects of HIV as I get older.
- I am optimistic about my future.
Stories from others who have used the English version of PozQoL
PozQoL and other PROMS recommended by UNSW study for use in clinical and community services working with people living with HIV.
HIV Futures is a survey of QoL among PLHIV in Australia. Project lead, Dr Jennifer Power, talks about the study, and about how PozQoL helps this research.
HIV clinician and researcher Professor Jenny Hoy talks about the benefits of using PozQoL in clinical settings. (Duration: 2m15s)
PozQoL Project Officer Petrina Hilton chats with HIV peer navigator Sarah Feagan about how PozQoL is used to support her work. (Duration: 5m54s)
Queensland Positive People (QPP) use PozQoL to evaluate their Life+ Program, which supports people with living with HIV throughout Qld.
PozQoL is being used in Le Cercle Orange, a Canadian project supporting people living with HIV (PLHIV) who do not have access to health care.
Multiple US studies use PozQoL to help understand the health-related quality of life (HRQoL) of people living with HIV (PLHIV).
Researchers are using PozQoL to help describe PLHIV experiences of stigma and discrimination in Aotearoa New Zealand.
PLHIV organisation, Living Positive Victoria, uses PozQoL to monitor and evaluate their peer programs for people newly diagnosed with HIV.