
PozQoL publications
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Discover how PozQoL improves our understanding of quality of life for people living with HIV
Explore key publications demonstrating PozQoL’s impact, from its rigorous development and validation to its use in diverse health and research settings.
- 📒 Core PozQoL publications
- Foundational studies: Publications on the development, validation, and piloting of PozQoL as a quality-of-life (QoL) scale for people living with HIV (PLHIV)
- Cross-cultural validations: Studies testing PozQoL’s reliability and adaptability across diverse cultural and linguistic contexts
- Applications and broader tools: Research and resources exploring how PozQoL can be used alongside other tools or within broader frameworks to monitor quality of life and improve care delivery
- 🌏 PozQoL in use
- Health service applications: Publications showing how PozQoL is integrated into clinical and community service settings
- Research studies: Studies using PozQoL to explore quality-of-life outcomes across different populations and themes
- 📈 Presentations and posters by the PozQoL team: Conference contributions highlighting the leadership of PLHIV in developing and implementing PozQoL
📒 Core PozQoL publications
Explore the research that underpins the PozQoL scale. These foundational publications include the initial development and validation studies that established PozQoL as a trusted measure of quality of life for people living with HIV (PLHIV). You’ll also find evidence from cross-cultural adaptation studies, showcasing PozQoL’s effectiveness and relevance across diverse populations. Additionally, explore innovative ways PozQoL can be used to enhance the monitoring of quality of life and drive better care outcomes.
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Foundational studies
📄 Development and validation of PozQoL: A scale to assess quality of life of PLHIV
Graham Brown, Gosia Mikołajczak, Anthony Lyons, Jennifer Power, Fraser Drummond, Aaron Cogle, Brent Allan, Craig Cooper, and Simon O’Connor (2018)
Published in BMC Public Health
📘 PozQoL: Valuing quality of life among people with HIV
Graham Brown, Gosia Mikołajczak, Anthony Lyons, Jennifer Power, Fraser Drummond, Aaron Cogle, Brent Allan, Craig Cooper, and Simon O’Connor (2017)
Published by Australian Research Centre in Sex, Health and Society, La Trobe University
Cross-cultural validations
📄 Validation of PozQoL scale in Turkish population living with HIV: a cross-cultural adaptation study
Sabri Atalay, Zeynep Sedef Varol, Sarp Singil, Ufuk Sönmez (2024)
Published in PeerJ
Applications and broader tools
📘 Developing an HIV consensus tool of health and social PROMs for clinical and community services
Graham Brown, Aleksandra Olekalns, Catherine Mai (2023)
Published by the Centre for Social Impact, University of New South Wales (Full report | Summary)
🌏 PozQoL in use
Discover how PozQoL has been applied in real-world settings to improve outcomes for PLHIV. This section features research and case studies illustrating the scale’s implementation in clinical services and community programs. From guiding health service improvements to uncovering trends in quality-of-life outcomes, these studies provide valuable insights into the practical uses of PozQoL.
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Health service applications
📄 Using a patient-reported outcome measure to assess quality of life at Western Sydney Sexual Health Centre
E Mason, DA Lewis, I Zablotska, and L Tomlins (2024)
Published in Sexual Health by CSIRO Publishing
📄 Implementation of a nurse-delivered cognitive behavioral therapy for adherence and depression of people living with HIV in Korea
Jung Ho Kim, Ji Min Kim, Misuk Ye, Jung In Lee, Seungmi Na, Youngjoon Lee, Duncan Short, and Jun Yong Choi (2022)
Published in Infection and Chemotherapy (See the PozQoL story)
📊 Quality of life in a new HIV nursing tool
Elizabeth A Crock and MJ Briffa (2022)
Presented at the Joint Australasian HIV&AIDS and Sexual Health Conferences (See the PozQoL story)
Research studies
📄 The role of perceived stigma and social support in predicting the quality of life in adult patients living with HIV/AIDS attending ART centre in a tertiary care hospital in North India
Imran Zaffer, Rashmi Kumari, Urvi Gupta, Bhavna Langer, Rajiv K Gupta, Jyoti Bala (2024)
Published in IJCH: A National Journal of Indian Association of Preventive & Social Medicine
📄 Quality of life among people living with HIV aged 50 years and over in Australia: Identifying opportunities to support better ageing
Joshua Dawe, Dean Cassano, Richard Keane, Simon Ruth, Anna Lee Wilkinson, Imogen Elsum, Jack Gunn, Graham Brown, Michael West, Jennifer Hoy, Jennifer Power, Mark Stoové (2023)
Published in HIV Medicine
📘 HIV Futures 10: Quality of life among people living with HIV in Australia
Thomas Norman, Jennifer Power, John Rule, Jimmy Chen, and Adam Bourne (2022)
Published by Australian Research Centre in Sex, Health and Society (ARCSHS), La Trobe University (See the PozQoL story)
📄 Quality of life of people living with HIV in Australia: The role of stigma, social disconnection and mental health
Carley J Mendonca, Toby RO Newton-John, Dion M Alperstein, Kim Begley, Ruth M Hennessy, and Shiraze M Bulsara (2022)
Published in AIDS and Behavior
📄 Quality of life in people living with HIV in Aotearoa New Zealand: an exploratory cross-sectional study
Susan McAllister, Ella Iosua, Brooke Hollingshead, Jane Bruning, Mark Fisher, Rodrigo Olin, Judith Mukakayange, Carl Greenwood, Ashleigh de Gouw, and Patricia Priest (2022)
Published in AIDS Care (See the PozQoL story)
📄 Quality of life in people living with HIV in Romania and Spain
Meaghan Kall, Ujué Fresán, Danielle Guy, Graham Brown, Cristina Burgui, Jesús Castilla, Victor Ionel Grecu, Florentina Dumitrescu, Valerie Delpech, and Jeffrey V Lazarus (2021)
Published in BMC Infectious Diseases (See the PozQoL story)
📘 HIV Futures 9: Quality of life among people living with HIV in Australia
Jennifer Power, Stephanie Amir, Graham Brown, John Rule, Jen Johnson, Anthony Lyons, Adam Bourne, and Marina Carman (2019)
Published by Australian Research Centre in Sex, Health and Society (ARCSHS), La Trobe University.
📈 Presentations and posters by the PozQoL team
This collection showcases the conference presentations and posters delivered by the PozQoL team during the scale’s early years. These contributions highlight the leadership of PLHIV in shaping the tool, from its conceptualisation to validation, and provide insight into the collaborative efforts that brought PozQoL to life.
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2019
🎤 PozQol Implementation Trial – Incorporating a quality of life scale for PLHIV into day to day clinical and community practice
Graham Brown, James Dunne, John Rule, Timothy Krulic, Jenny Hoy, Andrew Buchanan, Chris Howard, Neil Fraser, Fraser Drummond, Duncan Short, Anthony Lyons, and Jennifer Power
Presented at the Australasian HIV & AIDS Conference, Perth
🎤 PozQoL: Assessing PLHIV quality of life in Melbourne, Australia
Graham Brown
Presented at the HIV Fast Track Cities Conference, London (Slides)
2018
🎤 GIPA in action – PLHIV leadership and guidance in the development of a new PLHIV quality of life scale for the community and policy sector
Graham Brown, Aaron Cogle, Craig Cooper, Simon O’Connor, Brent Allan, Suzy Malhotra, Gosia Mikołajczak, Jennifer Power, Anthony Lyons, and Fraser Drummond
Presented at the International AIDS Conference, Amsterdam (Video | Abstract)
📊 GIPA in Action – PLHIV leadership in the development of a PLHIV quality of life scale for the community, health and policy sector
Graham Brown, Aaron Cogle, Craig Cooper, Simon O’Connor, Suzy Malhotra, Brent Allan, Gosia Mikołajczak, Jennifer Power, Anthony Lyons, and Fraser Drummond
Presented at the International AIDS Conference, Amsterdam (Poster)
📊 PozQoL – A short quality of life measure for people living with HIV
Gosia Mikołajczak, Graham Brown, Anthony Lyons, Jennifer Power, Fraser Drummond, Aaron Cogle, Brent Allan, Craig Cooper, Simon O’Connor, and Suzy Malhotra
Presented at the International AIDS Conference, Amsterdam (Poster)
🎤 PozQoL, valuing quality of life of PLHIV
Graham Brown, Gosia Mikołajczak, and Jennifer Power
Presented at the New Zealand HIV Treatment Update seminar, Auckland, New Zealand
2017
🎤 Optimising quality of life — the fourth 90%: How to include quality of life in guidelines
Graham Brown
Presented at the Australasian HIV/AIDS Conference, Canberra
📊 PozQoL – A targeted quality of life measure for the HIV sector in Australia
Gosia Mikołajczak, Graham Brown, Anthony Lyons, Jennifer Power, Fraser Drummond, Aaron Cogle, Brent Allan, Craig Cooper, and Simon O’Connor
Presented at the Australasian HIV and AIDS Conference, Canberra
Have a publication or story to share? We’d love to feature it! Whether it’s an academic study or a personal account of your experiences using PozQoL, your insights can inspire and guide others in the PozQoL community. Get in touch to contribute.